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We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Hayden's story, see his original story click here: Hayden Makris. We are about a week ...

Hayden Makris Update (San Antonio, TX)

Hayden, STX209, Update

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by Sarah Lemberg Friesth Our story is not unlike so many other families dealing with Fragile X Syndrome. Our son, Trek, was diagnosed at 22 months old; just shy of turning two. The time when, for most children, the world ...

Trek Friesth (Chandler, AZ)

STX209, Trek

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We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Logan's story, see his original story click here: Logan Kisamore. We are officially ...

Logan Kisamore Update (Baton Rouge, LA)

Logan, STX209, Update

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by Shante Barnes My daughter Jasmine  is 7 years 11 months old.  She will be 8 on July 1st.  At age 4 she was diagnosed with Fragile X Syndrome.  It broke my heart was devastating. At the same time everything she was ...

Jasmine Barnes (Glen Burnie, MD)

Jasmine, STX209

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By Rachelle Gatewood And So It Begins . . . Picture it:  L. October, 2012.  Birthday party of a friend. Lots of people. Lots of noise.  People she knows. People she doesn't.  10 mg of STX-209 in her system twice a ...

Lauren Gatewood (Converse, TX)

Lauren, STX209

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By Holly Roos The only thing stronger than fear... Because sometimes... I just don't know what to say... Many days have passed.  No, really a lot of them have passed.  A lot has happened.  Many of you have emailed me ...

Parker & Allison Roos (Canton, IL)

Allison, Parker, STX209

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By Laurie Bridges STX209 for Caroline really made a difference in lowering her anxiety, frustration, and overall worry.  Her little brother said that it made her happier.  Now that we have come off of STX209 the anxiety ...

Caroline Bridges (Kingwood, TX)

Caroline, STX209

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Our experience with STX209 was great, we enrolled in the study at Vanderbilt. We knew a few weeks into the trial we were NOT on the placebo; he was FINALLY connecting with his environment and the pieces were fitting ...

Noah Brandon (Memphis, TN)

Noah, STX209

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On June 17th, Roche CEO Severin Schwan responded to our entreaties. (Please see here for that response.) We believe that there is no response more fitting than sharing another update.  Words are strong, but seeing - well, ...

David & Jonathan Wright Update (Visalia, CA)

David, Jonathan, STX209, Update