We will be following up with the children as they titrate off the medication and resume life without it. To see the latest update please click here: Ayden AbouElSeoud. By Cortney AbouElSeoud
My son Ayden turned five last ...
By Missy Zolecki
We entered into the Phase II STX209 trial in August 2009. After completing the 2 portions of that trial, we were offered an opportunity to begin an open label extension. December 2009, Matt began that ...
By Jeanie Calenoff
I am sure that I am not the only mother of a Child with Fragile X Syndrome who, in recent days has been reaching out to anyone who can help. For the past three and a half years, my son Harry ...
We will be following up with the children as they titrate off the medication and resume life without it. To see the latest update please click here: Rhett Murphy. By Christina Murphy
I am a stay at home mom with 3 boys, 2 ...
By Tina Makris
Six years ago the bottom fell out of my world. I was faced with my biggest fear, that my little man would not outgrow the delays. That he was always going to struggle. It was the first time I heard the words ...
By Sharon GumeroveMy twins Matt and Hunter are 4 and half years old! As such, they were never able to take part in the Arbaclofan/STX209 trials since you had to be 5 years old to participate. But don't mistake their ...
By Christie Clark Friedman
After receiving our son Grady's diagnosis on his 18-month birthday a mere 13-months ago, we were devastated and fearful about what his future would bring. We were consumed by the fear and ...
Grady Friedman (Flagstaff, AZ)
STX209
By Aimee & Josh Freedman
How do we even begin to say what STX209 has done for our family, what it has done for our son, our hope for what it could do for our daughter?
Parents of children with special needs are often ...
By Kristin Dochterman Carver
My son is 11 years old. He is in fifth grade and will be attending middle school next year. He has a great sense of humor and loves Sponge Bob and PBS Kids. He also has great anxiety in new ...
By Patricia Kisamore
This picture is brought to you by Stx-209. A little boy playing a video game with his friend, not to unusual right? It is if that little boy has Fragile X Syndrome and this was his very first birthday ...
By Tiffany Pace
I've been reflecting back on the past 14 years of life with David and the journey we have taken as a family in all of that time. David was diagnosed with Fragile X syndrome on September 16, 2002 and the ...
We are a group of mothers who had children participating in a drug trial extension for STX209, all of our children have fragile X syndrome (and some have autism too.) We are very upset that the drug trial extension was ...
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STX209
