by Tammy Anderson
For my family STX209 was such a saving grace and a peace of mind about Evan's future. Evan who 11 is my grandson/adopted son. We have been his full time care givers since he was 2. He was diagnosed ...
We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Jason & Andrew's story, to see their original story click here: Jason & ...
By Joyce Jones Bock
These are my grand kids. Erin will be 17 soon and Alec is 14. Erin has been a different girl since she has been in the study & receiving STX209. She has friends now, her grades have improved greatly ...
by Laura Alcala
I have hesitated to share our story because it has not been the regression, hitting, heartbreaking outcome others have had. That said, my Michael, 14 was never an aggressive child. That trait I DO see in ...
by Kristie Meyer
Our STX209 Story
For years we have been asked to write a vision statement for Drew's IEPs. We always write something to this effect: "We would like Drew to meet his full potential and become a ...
We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Jonathan’s story, see his original story click here: Jonathan Armer.
Many of you have ...
Jonathan Armer Update (Newport News, VA)
Jonathan A., STX209, Update
by Bonnie Korman
I remember fondly the day we started the Arbaclofen trial at Rush in Chicago. Of course, we didn't know if they were getting any of the medication or the placebo, but the anticipation was thick. We ...
We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Austin’s story, see his original story click here: Austin Nantais.
It’s day nine of ...
We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Liam’s story, see his original story click here: Liam Butler.
Transition meltdowns, ...
We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Hayden's story, see his original story click here: Hayden Makris.
We are about a week ...
by Sarah Lemberg Friesth
Our story is not unlike so many other families dealing with Fragile X Syndrome. Our son, Trek, was diagnosed at 22 months old; just shy of turning two. The time when, for most children, the world ...
