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We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Jason & Andrew's story, to see their original story click here:  Jason & ...

Andrew & Jason Frech Update (Berwyn, PA)

Andrew, Jason, STX209, Update

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We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Jonathan’s story, see his original story click here: Jonathan Armer. Many of you have ...

Jonathan Armer Update (Newport News, VA)

Jonathan A., STX209, Update

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We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Austin’s story, see his original story click here: Austin Nantais. It’s day nine of ...

Austin Nantais Update (Wyandotte, MI)

Austin, STX209, Update

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We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Liam’s story, see his original story click here: Liam Butler. Transition meltdowns, ...

Liam Butler Update (Shillington, PA)

Liam, STX209, Update

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We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Hayden's story, see his original story click here: Hayden Makris. We are about a week ...

Hayden Makris Update (San Antonio, TX)

Hayden, STX209, Update

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We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Logan's story, see his original story click here: Logan Kisamore. We are officially ...

Logan Kisamore Update (Baton Rouge, LA)

Logan, STX209, Update

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On June 17th, Roche CEO Severin Schwan responded to our entreaties. (Please see here for that response.) We believe that there is no response more fitting than sharing another update.  Words are strong, but seeing - well, ...

David & Jonathan Wright Update (Visalia, CA)

David, Jonathan, STX209, Update

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Our efforts to be noticed have given us a small victory today. While it was not a response we were hoping for, it is a response nonetheless. Dr. Severin Schwan Responds: An Open Letter to Parents To read the original ...

The CEO of Roche responds…

Roche, STX209, Update

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We will be following up with the children as they titrate off the medication and resume life without it. This is the first update to Harry’s story, see his original story click here: Harry Zucker. By Jeanie Calenoff How ...

Harry Zucker Update (Skokie, IL)

Harry, STX209, Update